PRINTER'S NO. 595
No. 552 Session of 2001
INTRODUCED BY STAIRS, COLAFELLA, CLYMER, FLEAGLE, FLICK, HERMAN, McILHATTAN, R. MILLER, NAILOR, SCHULER, CURRY, GRUCELA, STURLA, C. WILLIAMS, M. BAKER, BARRAR, BELARDI, BUNT, CALTAGIRONE, COY, GEORGE, HARHAI, HENNESSEY, HESS, HORSEY, JOSEPHS, KENNEY, LAUGHLIN, MARKOSEK, MELIO, MICOZZIE, ORIE, PIPPY, SAINATO, SATHER, SAYLOR, SHANER, B. SMITH, E. Z. TAYLOR, THOMAS, TIGUE, TRELLO, TULLI, WOJNAROSKI AND FRANKEL, FEBRUARY 7, 2001
REFERRED TO COMMITTEE ON EDUCATION, FEBRUARY 7, 2001
AN ACT 1 Amending the act of December 19, 1990 (P.L.1372, No.212), 2 entitled "An act providing for early intervention services 3 for infants, toddlers and preschool children who qualify; 4 establishing the Interagency Coordinating Council and 5 providing for its powers and duties; and conferring powers 6 and duties upon the Department of Education and the State 7 Board of Education, the Department of Health and the 8 Department of Public Welfare," further providing for 9 intervention services for infants, toddlers and eligible 10 young children with disabilities; expanding the membership of 11 the Interagency Coordinating Council; further providing for 12 the expenditure of certain appropriations; and making 13 editorial changes. 14 The General Assembly of the Commonwealth of Pennsylvania 15 hereby enacts as follows: 16 Section 1. Sections 102, 103, 104, 105(c), 106, 301, 302, 17 304(c), 305 and 501 of the act of December 19, 1990 (P.L.1372, 18 No.212), known as the Early Intervention Services System Act, 19 are amended to read: 20 Section 102. Legislative findings for early intervention.
1 (a) Needs.--The General Assembly finds that there is a need 2 to: 3 (1) Increase the opportunity for the development of 4 infants, toddlers and eligible young children [who are 5 handicapped] with disabilities in order to minimize their 6 potential for developmental delay. 7 (2) Minimize the need for special education services as 8 these infants, toddlers and eligible young children [who are 9 handicapped] with disabilities attain the age of beginners. 10 (3) Reduce the number of [handicapped] individuals with 11 disabilities being placed in institutions and enhance their 12 potential for independent living in society. 13 (4) Assist the families of [handicapped] infants and 14 toddlers with disabilities to meet their children's special 15 needs. 16 (5) Implement the provisions of Parts B and [H] C in 17 order to be eligible to receive Federal funding to help 18 establish and maintain programs and services to assist 19 [handicapped] infants[,] and toddlers with disabilities and 20 their families and eligible young children. 21 (b) Remedy.--The General Assembly further finds that early 22 intervention services for [handicapped] infants[,] and toddlers 23 with disabilities and their families and eligible young children 24 are cost effective and effectively serve the developmental needs 25 of [children who are handicapped] these children. 26 Section 103. Definitions. 27 The following words and phrases when used in this act shall 28 have the meanings given to them in this section unless the 29 context clearly indicates otherwise: 30 "Age of beginners." The minimum age established by the 20010H0552B0595 - 2 -
1 school district board of directors for admission to the 2 district's first grade under 22 Pa. Code § 11.15 (relating to 3 admission of beginners). 4 "Council." The Interagency Coordinating Council established 5 in section 106. 6 "Early intervention services." Developmental services which 7 meet all of the following: 8 (1) Are provided under public supervision. 9 (2) Are designed to meet the developmental needs of [a 10 handicapped infant, toddler] an infant or toddler with 11 disabilities or eligible young child in any of the following 12 areas: 13 (i) Physical development. 14 (ii) Cognitive development. 15 (iii) Sensory development. 16 (iv) [Language and speech] Communication development 17 or alternative communication development. 18 (v) [Psycho-social] Social-emotional development. 19 [(vi) Self-help skills.] 20 (vi) Adaptive development. 21 (3) [Are] For eligible infants and toddlers with 22 disabilities and their families, are developed to meet the 23 requirements of this act, including, but not limited to, the 24 following: 25 (i) Family training. 26 (ii) Social work services, including counseling and 27 home visits. 28 (iii) Special instruction. 29 (iv) Speech pathology and audiology. 30 (v) Occupational therapy. 20010H0552B0595 - 3 -
1 (vi) Physical therapy. 2 (vii) Psychological services. 3 (viii) Medical services only for diagnostic or 4 evaluation purposes. 5 (ix) Early identification, screening and assessment 6 services. 7 (x) Health services necessary to enable the infant 8 or toddler to benefit from the other early intervention 9 services. 10 (xi) Assistive technology devices and services. 11 [(xii) For handicapped infants and toddlers, other 12 services required by Part H.] 13 (xii) For infants and toddlers with disabilities, 14 other services required by Part C, such as nutrition, 15 service coordination services and transportation and 16 related costs that are necessary to enable the infants or 17 toddlers with disabilities and their families to receive 18 early intervention services. 19 (xiii) Vision services. 20 (4) Are provided by qualified personnel, including, but 21 not limited to, special educators, speech and language 22 pathologists and audiologists, occupational therapists, 23 physical therapists, psychologists, social workers, nurses 24 [and nutritionists.], nutritionists, family therapists, 25 orientation and mobility specialists, pediatricians and other 26 physicians. 27 (5) Are provided in conformity with an individualized 28 family service plan for eligible infants, toddlers and their 29 families. 30 [(6) Are provided to eligible young children in 20010H0552B0595 - 4 -
1 compliance with the provisions of this act and Part B. 2 Compliance includes procedural safeguards and free 3 appropriate public education, including related services and 4 individualized education programs.] 5 (6) For eligible young children, are developed to 6 include specialized instruction in compliance with this act 7 and Part B. Compliance, for this purpose, includes the 8 procedural safeguards and free appropriate education, 9 including related services and individualized education 10 programs, which are necessary to insure that compliance is 11 effected. These related services shall include, but not be 12 limited to, the following related services: 13 (i) Family training. 14 (ii) Social work services, including counseling and 15 home visits. 16 (iii) Speech pathology and audiology. 17 (iv) Occupational therapy. 18 (v) Physical therapy. 19 (vi) Psychological services. 20 (vii) Medical services, for diagnostic or evaluation 21 purposes only. 22 (viii) Early identification, screening and 23 assessment services. 24 (ix) Assistive technology devices and services. 25 (7) Are provided in the least restrictive environment 26 for eligible young children or natural environment for 27 infants and toddlers with disabilities, as appropriate to the 28 [child's] children's needs. Infants, toddlers and eligible 29 young children who will be served in a non-home-based setting 30 must, to the maximum extent consistent with the child's 20010H0552B0595 - 5 -
1 abilities, receive early intervention services in a setting 2 with [nonhandicapped] typically developing children. Each 3 infant's or toddler's IFSP and each eligible young child's 4 IEP must contain the recommended service option placement and 5 the rationale for why it represents the least restrictive 6 environment. 7 ["Education of the Handicapped Act." The Education of the 8 Handicapped Act (Public Law 91-230, 20 U.S.C. § 1401 et seq.).] 9 "Eligible young child." A child who is younger than the age 10 of beginners and at least three years of age and who meets any 11 of the following criteria: 12 (1) The child has any of the following physical or 13 mental disabilities: autism/pervasive developmental disorder, 14 serious emotional disturbance, neurological impairment, 15 deafness/hearing impairment, specific learning disability, 16 mental retardation, multihandicap, other health impairment, 17 physical disability, speech impairment or blindness/visual 18 impairment. 19 (2) The child is considered to have a developmental 20 delay, as defined by regulations of the State Board of 21 Education and the standards of the Department of Education. 22 "IEP." Individualized Education Program. 23 "IFSP." Individualized Family Service Plan. 24 "Individuals with Disabilities Education Act." The 25 Individuals with Disabilities Education Act (Public Law 91-230, 26 20 U.S.C. § 1400 et seq.). 27 ["Handicapped infants and toddlers."] "Infants and toddlers 28 with disabilities." Individuals ranging in age from birth to 29 two years of age, inclusive, who need early intervention 30 services for any of the following reasons: 20010H0552B0595 - 6 -
1 (1) They are experiencing developmental delays, as 2 defined by regulations of the Department of Public Welfare 3 and as measured by appropriate diagnostic instruments and 4 procedures in any of the following areas: cognitive 5 development, sensory development, physical development, 6 [language and speech development, psycho-social development 7 or self-help skills] communication development, social- 8 emotional development or adaptive development and are based 9 on informed clinical opinion and procedures. 10 (2) They have a diagnosed physical or mental condition 11 which has a high probability of resulting in developmental 12 delay under paragraph (1). This paragraph applies to 13 conditions with known etiologies and developmental 14 consequences. Examples of these conditions include Down 15 syndrome; other chromosomal abnormalities; sensory 16 impairments, including vision and hearing; inborn errors of 17 metabolism; microcephaly; severe attachment disorders, 18 including failure to thrive; seizure disorders; and fetal 19 alcohol syndrome. 20 ["IEP." Individualized Education Program. 21 "IFSP." Individualized Family Service Plan.] 22 "Informed clinical opinion." Documentation by a number of 23 qualified personnel, as contained in the definition of "early 24 intervention services," and as based on direct observation as 25 well as other knowledge of the child when there are no 26 standardized measures or the procedures are not appropriate for 27 the child's level of functioning or manifestation of the 28 disability or development areas. The multidisciplinary team will 29 then determine, through its informed clinical opinion, that a 30 child is eligible for early intervention services. Informed 20010H0552B0595 - 7 -
1 clinical opinion applies only to infants and toddlers with 2 disabilities and not eligible young children. 3 "Lead agency." For early intervention services to eligible 4 children from birth to two years of age, inclusive, the 5 Department of Public Welfare; for early intervention services to 6 eligible young children, the Department of Education. 7 "Local interagency agreement." An agreement entered into by 8 local agencies receiving early intervention funds directly from 9 the Commonwealth and made under the State interagency agreement 10 providing for the delivery of early intervention services within 11 a specified geographic area. 12 "MAWA agency." An agency that enters into a mutually agreed- 13 upon written arrangement with the Department of Education. 14 "Mutually agreed-upon written arrangements." An agreement 15 between the Department of Education and intermediate units, 16 school districts or other public or private agencies to provide 17 early intervention services that comply with the early 18 intervention regulations of the State Board of Education and 19 early intervention standards of the Department of Education. 20 These agreements may include memoranda of understanding pursuant 21 to approved plans submitted to the Department of Education by 22 intermediate units and school districts. 23 "Part B." Part B of the [Education for the Handicapped] 24 Individuals with Disabilities Education Act (Public Law 91-230, 25 20 U.S.C. § 1411 et seq.), as it applies to preschool children. 26 "Part [H." Part H] C." Part C of the [Education for the 27 Handicapped] Individuals with Disabilities Education Act (Public 28 Law 91-230, 20 U.S.C. § 1471 et seq.). 29 "State interagency agreement." An agreement entered into by 30 the Department of Education, the Department of Health, the 20010H0552B0595 - 8 -
1 Department of Public Welfare and any other Commonwealth agency 2 for the purposes of this act and of Part B and Part [H] C. 3 Section 104. State interagency agreement. 4 (a) Interagency agreement.--The Department of Education, the 5 Department of Health and the Department of Public Welfare shall 6 enter into and maintain a State interagency agreement to enable 7 the State and local agencies serving infants[,] and toddlers 8 with disabilities and eligible young children [who are 9 handicapped] with disabilities to establish working 10 relationships that will increase the efficiency and 11 effectiveness of their early intervention services. The 12 agreement shall outline the responsibilities of those State and 13 local agencies and shall implement a coordinated service 14 delivery system through local interagency agreements. 15 (b) Components.--The State interagency agreement shall 16 address, at a minimum, the following issues: 17 (1) Responsibilities of State and local agencies. 18 (2) Eligibility determination and referrals. 19 (3) Establishment of local agreements. 20 (4) Fiscal responsibilities of the agencies. 21 (5) Dispute resolution between agencies. 22 (6) Payor of last resort. 23 (7) Maintenance of effort. 24 (8) Administrative management structure. 25 (9) Establishment and maintenance of local interagency 26 coordinating councils, which shall include, but not be 27 limited to, parents and private providers and which shall be 28 authorized to advise and comment on the development of local 29 interagency agreements for their specified geographic area 30 and to communicate directly with the Department of Education, 20010H0552B0595 - 9 -
1 the Department of Health, the Department of Public Welfare 2 and the council regarding the local interagency agreement and 3 any other matters pertaining to this act. At least 50% of the 4 members of the local interagency coordinating council shall 5 be parents of infants or toddlers with disabilities or 6 eligible young children with disabilities who are 12 years of 7 age or younger. The local interagency coordinating councils 8 are the duly recognized local body for the purposes of this 9 act. 10 (10) Plans by the Department of Health, the Department 11 of Public Welfare and the Department of Education to work 12 together to develop a coordinated system of [case management] 13 service coordination. 14 (c) Goal.--Issues under subsection (b) shall be addressed to 15 meet the requirements of this act and the provisions of Part B 16 and Part [H] C. 17 Section 105. Other duties of State agencies. 18 * * * 19 (c) Annual reports.--By [July] October 31, the Department of 20 Health, the Department of Public Welfare and the Department of 21 Education shall submit annual reports to the council on the 22 status of early intervention services during the preceding 23 [calendar] fiscal year. These reports shall be used as the basis 24 for the report submitted by the council under section 106(f)(4). 25 Section 106. Council. 26 (a) Establishment.--The Interagency Coordinating Council is 27 established as the duly recognized council for the purposes of 28 this act. The council shall consist of [15] a minimum of 25 29 voting members but shall not exceed 30 voting members appointed 30 by the Governor. The council shall serve as the council required 20010H0552B0595 - 10 -
1 by the [Education of the Handicapped Act Amendments of 1986 2 (Public Law 99-457, 100 Stat. 1145)] Individuals with 3 Disabilities Education Act. The term of office of the voting 4 members shall be three years, except for the cabinet officers or 5 their designees who shall serve as long as they are in office. 6 (b) Membership.--The membership of the council shall consist 7 of the following: 8 (1) [Three] Six parents of [handicapped] infants[,] or 9 toddlers with disabilities or eligible young children with 10 disabilities, including minority parents, with knowledge of 11 or experience with programs for infants or toddlers with 12 disabilities or eligible young children with disabilities. 13 (2) One [provider of a child development program, such 14 as] Head Start provider. 15 (3) One parent of a child with a disability who has 16 received early intervention services and is now beyond six 17 years of age. 18 [(4) Three providers of early intervention services, 19 including one school district provider, one intermediate unit 20 provider and one private provider.] 21 (4) Two public education providers of programs for 22 eligible young children with disabilities. 23 [(5) One member from the General Assembly.] 24 (5) Two members of the General Assembly, one from the 25 Senate and one from the House of Representatives. 26 (6) One representative of the American Academy of 27 Pediatrics. 28 (7) [One] Two county mental health/mental retardation 29 [administrator or designee] administrators. 30 (8) One individual who is directly involved in personnel 20010H0552B0595 - 11 -
1 preparation. 2 (9) The Secretary of Education or a designee. 3 (10) The Secretary of Public Welfare or a designee. 4 (11) The Secretary of Health or a designee. 5 [(12) As ex officio members, who shall not have voting 6 privileges: a representative of the Developmental 7 Disabilities Planning Council and members appointed by the 8 chair of the council.] 9 (12) The Insurance Commissioner or a designee. 10 (13) Two private providers of programs for infants and 11 toddlers with disabilities. 12 (14) One public or private provider of child care 13 services. 14 (15) Members at large, not to exceed seven, chosen to 15 represent diverse interests who have knowledge of or 16 experience with programs for infants and toddlers with 17 disabilities and eligible young children with disabilities. 18 (c) Designees.--The designees of the cabinet officers under 19 subsection (b) must be deputy secretaries, commissioners or 20 bureau directors. 21 (d) Officers.--The chair of the council shall be appointed 22 by the Governor and must be selected from those members who are 23 neither employees of the Commonwealth nor elected officials. 24 (e) Committees.--The chair of the council may appoint 25 special committees, which may include nonmembers of the council, 26 to make recommendations to the council concerning key issues 27 related to this act. 28 (f) Powers and duties.--The council has the following powers 29 and duties: 30 (1) To review and comment to the Department of Health, 20010H0552B0595 - 12 -
1 the Department of Public Welfare, the Department of Education 2 and the State Board of Education on draft regulations and 3 standards for the implementation and maintenance of a 4 Statewide system of early intervention services which are in 5 accordance with the provisions of this act and Parts B and 6 [H.] C. The council may advise and assist the lead agency for 7 Part C and the Department of Education regarding the 8 development of and implementation of appropriate services for 9 children ages birth to age of beginners. 10 (2) To review and comment to the appropriate legislative 11 committees and the Independent Regulatory Review Commission 12 on regulations and standards proposed under this act. 13 (3) To assist and advise Commonwealth agencies in their 14 effort to carry out the provisions of this act. This 15 paragraph includes, but is not limited to: 16 (i) recommendations for the implementation and 17 maintenance of a Statewide comprehensive, coordinated, 18 multidisciplinary, interagency program, as described in 19 Chapter 3; 20 (ii) suggestions regarding sources of fiscal and 21 other support from Federal, State, local and private 22 sources, including insurance coverage; and 23 (iii) recommendations regarding in-service training 24 and personnel competencies. 25 (4) To prepare and submit, with the cooperation of the 26 Secretary of Education, the Secretary of Health and the 27 Secretary of Public Welfare, an annual report during the 28 month of [September] December to the Governor and the 29 Majority and Minority Chairmen of the Education Committee of 30 the Senate and the Education Committee of the House of 20010H0552B0595 - 13 -
1 Representatives. This report shall include the number of 2 programs being provided by intermediate units, school 3 districts and public and private providers, including Head 4 Start; the number of children being served; the status of 5 compliance with State regulations and standards; descriptive 6 information on the programs; information on personnel needs; 7 any suggested changes in State statutes and regulations 8 governing these programs; any information the United States 9 Secretary of Education may require; and any other information 10 the council deems appropriate. 11 (5) To meet at least six times a year. 12 (6) To perform other functions required of a state's 13 interagency coordinating council under Part [H] C. 14 (g) Compensation of members.--The members shall serve 15 without compensation but shall be reimbursed for reasonable 16 costs incurred, including costs related to child care[.], except 17 that compensation shall be provided to a member of the council 18 if such member is not employed or must forfeit wages from other 19 employment when performing official council business. Employees 20 of the Commonwealth or any of its political subdivisions are 21 prohibited from receiving compensation except for reasonable 22 costs incurred. 23 (h) Staff.--Staff services for the council shall be provided 24 by the Department of Health, the Department of Public Welfare 25 and the Department of Education and shall include the 26 preparation and distribution of the annual report required under 27 subsection (f)(4). 28 Section 301. Requirements. 29 A Statewide system of coordinated, comprehensive, 30 multidisciplinary, interagency programs shall be established and 20010H0552B0595 - 14 -
1 maintained by the Department of Health, the Department of Public 2 Welfare and the Department of Education to provide appropriate 3 early intervention services to all [handicapped] infants[,] and 4 toddlers with disabilities and their families and to eligible 5 young children. The system shall include the following minimum 6 components: 7 (1) Compatible definitions of the term "developmental 8 delay" shall be promulgated and adopted by the Department of 9 Public Welfare, the Department of Health and the Department 10 of Education, with review and comment of the council under 11 section 106(f)(1). The definition shall provide for the 12 continuity of program services and shall be used in 13 implementing programs under this act. 14 (2) An assurance that appropriate early intervention 15 services are available to all eligible [handicapped] 16 infants[,] and toddlers with disabilities and their families 17 by September 1, 1991, and to all eligible young children by 18 July 1, 1991. 19 [(3) A timely, comprehensive, multidisciplinary 20 evaluation of the functioning of each handicapped infant, 21 toddler and eligible young child and the needs of the 22 families to assist appropriately in the development of the 23 handicapped infant, toddler and eligible young child.] 24 (3) A timely, comprehensive, multidisciplinary 25 evaluation of the strengths and needs of each infant and 26 toddler with disabilities and eligible young child, the needs 27 of the family and the resources and priorities to assist 28 appropriately in the development of the infant and toddler 29 with disabilities and eligible young child with disabilities. 30 (4) For all [handicapped] infants[,] and toddlers with 20010H0552B0595 - 15 -
1 disabilities and their families, an IFSP in accordance with 2 Part [H] C, including [case management] service coordination 3 services in accordance with the service plan. 4 (5) For each eligible young child, an IEP in accordance 5 with Part B. 6 (6) A comprehensive child-find system, including a 7 system for making referrals to service providers that 8 includes timelines and provides for the participation by 9 primary referral sources. 10 (7) A public awareness program focusing on early 11 identification of [handicapped] infants[,] and toddlers with 12 disabilities and eligible young children. 13 (8) A central directory, which includes early 14 intervention services, resources and experts available in 15 this Commonwealth and research and demonstration projects 16 being conducted in this Commonwealth. 17 (9) A comprehensive system of personnel development and 18 policies and procedures relating to the establishment and 19 maintenance of standards to ensure that personnel necessary 20 to carry out this act are appropriately and adequately 21 prepared and trained. 22 (10) A procedure for securing timely reimbursement of 23 funds. 24 (11) Procedural safeguards with respect to programs 25 under this act. 26 (12) A system for compiling data on the numbers of 27 [handicapped] infants[,] and toddlers with disabilities and 28 their families and eligible young children in need of 29 appropriate early intervention services; the number of 30 infants[,] and toddlers with disabilities and their families 20010H0552B0595 - 16 -
1 and eligible young children served; and the types of services 2 provided. 3 (13) A system of program standards evaluation and 4 compliance. 5 (14) An exit criteria, which provides procedures for a 6 child to exit from early intervention services. This exit 7 plan must address both the needs of the child who has 8 attained age of beginners as well as the child who, at any 9 age between birth and age of beginners, no longer meets the 10 eligibility criteria. If a child has been successful in 11 obtaining age-appropriate behavior and abilities, the fact 12 that the child participated in early intervention services 13 may not be communicated to the school district unless the 14 parent so chooses, nor may it be considered as a rationale 15 for placement in public school age special education classes. 16 If the child does not meet exit criteria and the child's IEP 17 or IFSP demonstrates that the child will benefit from 18 services which can be provided only through special 19 education, nothing in this act shall prevent that placement. 20 In either case, transition services shall be provided to the 21 child and the child's parents. 22 (14.1) Policies and practices are adopted to ensure 23 meaningful involvement of traditionally underserved groups, 24 including minority, low-income and rural families, in the 25 planning and implementation of all the requirements of this 26 act and to ensure that such families have access to services 27 within their local areas. 28 (15) A system for the provision of services to children 29 from birth to age two, inclusive, which are in compliance 30 with Part [H] C. 20010H0552B0595 - 17 -
1 (16) A system for the provision of services to children
2 three years of age to age of beginners which is in compliance
3 with Part B, this act and regulations and standards.
4 Section 302. Program regulations and standards.
5 (a) Public Welfare.--The Department of Public Welfare shall
6 define and address the following issues in developing
7 regulations:
8 (1) Methods for locating and identifying eligible
9 children.
10 (2) Criteria for eligible programs.
11 (3) Contracting guidelines.
12 (4) Personnel qualifications and a system of preservice
13 and in-service training.
14 (5) Early intervention services.
15 (6) Procedural safeguards.
16 (7) Appropriate placement, including the least
17 restrictive environment.
18 (8) A system of quality assurance, including evaluation
19 of the developmental appropriateness; quality and
20 effectiveness of programs; assurance of compliance with
21 program standards; and provision of assistance to assure
22 compliance.
23 (9) Data collection and confidentiality.
24 (10) Interagency cooperation at the State and local
25 level through the State interagency agreement and local
26 interagency agreements.
27 (11) Content and development of IFSP's.
28 (12) Any other issues which are required under this act
29 and Part [H] C.
30 (b) Education.--The State Board of Education and the
20010H0552B0595 - 18 -
1 Department of Education shall define and address the following 2 issues in developing regulations and standards: 3 (1) Methods for locating and identifying eligible 4 children. 5 (2) Criteria for eligible programs. 6 (3) Mutually agreed-upon written arrangement guidelines. 7 (4) Personnel qualification and a system of preservice 8 and in-service training. 9 (5) Early intervention services. 10 (6) Procedural safeguards. 11 (7) Appropriate placement, including the least 12 restrictive environment. 13 (8) A system of quality assurance, including evaluation 14 of the developmental appropriateness; quality and 15 effectiveness of programs; assurance of compliance with 16 program standards; and provision of assistance to assure 17 compliance. 18 (9) Data collection and confidentiality. 19 (10) Interagency cooperation at the State and local 20 levels. 21 (11) Contents and development of IEP's. 22 (12) Any other issues which are required under this act 23 and Part B. 24 Section 304. Administration by Department of Education. 25 * * * 26 (c) Public welfare.--The Secretary of Education shall 27 provide for the transition of eligible children, including 28 [handicapped] infants and toddlers with disabilities, who, prior 29 to their third birthday, received services under Part [H] C. The 30 Secretary of Education is authorized to accept responsibility 20010H0552B0595 - 19 -
1 pursuant to delegation from the Secretary of Public Welfare 2 under section 303(c) for providing early intervention services 3 to children less than three years of age. The Secretary of 4 Education is authorized to delegate responsibility to the 5 Secretary of Public Welfare for providing services for certain 6 children over the age of three. 7 * * * 8 Section 305. Child identification, assessment and tracking 9 system. 10 (a) Development of system.--The Department of Public 11 Welfare, the Department of Education and the Department of 12 Health shall develop a Statewide system for eligible child 13 identification, assessment and tracking. This system shall be 14 developed and coordinated by the agencies to assure that the 15 system is compatible with the child-find system as required by 16 Part B. 17 (b) At-risk children.--For the purposes of child 18 identification, assessment and tracking for infants and 19 toddlers, the Department of Public Welfare shall establish, by 20 regulation, population groups to be included in these 21 activities. The population groups shall include, but not be 22 limited to, children whose birth weight is under 1,500 grams; 23 children cared for in neonatal intensive care units of 24 hospitals; children born to chemically dependent mothers and 25 referred by a physician, health care provider or parent; 26 children who are seriously abused or neglected, as substantiated 27 and referred by the county children and youth agency under the 28 act of November 26, 1975 (P.L.438, No.124), known as the Child 29 Protective Services Law; and children with confirmed dangerous 30 levels of lead poisoning as set by the Department of Health. The 20010H0552B0595 - 20 -
1 Department of Public Welfare may establish other population 2 groups by regulation as it deems necessary. 3 (c) Components of system.--The system shall include, but 4 need not be limited to, the provision of the following 5 activities and services: 6 (1) The identification of eligible children and referral 7 to early intervention services as soon after birth as 8 possible. 9 (2) Referral services for families of eligible children. 10 (3) Continuing assessment of at-risk children from birth 11 through age of beginners. 12 (4) A description of agencies providing early 13 intervention services and the services provided by each 14 agency. 15 (5) Pertinent information regarding the exit of the 16 child from early intervention services. 17 (6) The orderly transfer of the accumulated information 18 to the appropriate provider upon the child's attainment of 19 age of beginners, except if the child has met exit criteria 20 contained in this act. 21 (d) Confidentiality.--Proper measures shall be developed and 22 implemented to assure the confidentiality of the data contained 23 in the system. Information shall be accessed only by appropriate 24 staff of the Department of Public Welfare, the Department of 25 Education and the Department of Health, including the staff of 26 each agency's local entities, such as county mental health and 27 mental retardation offices, school districts and intermediate 28 units, which are responsible for the provision of services 29 either directly or through subcontract to private providers. 30 Nothing in this section is intended to preclude the utilization 20010H0552B0595 - 21 -
1 of data to provide for the preparation of reports, fiscal 2 information or other documents required by this act or the 3 [Education of the Handicapped Act] Individuals with Disabilities 4 Education Act; but no information may be used in a manner which 5 would allow for the identification of an individual child or 6 family. 7 Section 501. Regulations and standards. 8 Regulations of the State Board of Education, 22 Pa. Code Ch. 9 14, published at 20 Pa.B. 3339 (June 16, 1990), and the 10 Department of Education Standards, 22 Pa. Code Ch. 342, 11 published at 20 Pa.B. 3357 (June 16, 1990), as approved by the 12 State Board of Education, governing the provision of early 13 intervention services, shall take effect upon their 14 reaffirmation by the State Board of Education. [The definition 15 of eligible young child in those regulations and standards is, 16 with regard to the reference to being two years and nine months 17 of age by September 1, superseded by the definition of eligible 18 young child in this act.] Should the State Board of Education 19 propose to make any revisions in the regulations at the time of 20 reaffirmation and at any time thereafter, the regulations shall 21 be subject to the provisions of the act of July 31, 1968 22 (P.L.769, No.240), referred to as the Commonwealth Documents 23 Law, the act of October 15, 1980 (P.L.950, No.164), known as the 24 Commonwealth Attorneys Act, and the act of June 25, 1982 25 (P.L.633, No.181), known as the Regulatory Review Act. 26 Section 2. This act shall take effect immediately. A22L24DMS/20010H0552B0595 - 22 -