PRINTER'S NO. 3832
No. 687 Session of 2006
INTRODUCED BY HESS, MAHER, PHILLIPS, ARGALL, BAKER, BALDWIN, BEBKO-JONES, BEYER, BISHOP, BUNT, CALTAGIRONE, CAPPELLI, COHEN, CORRIGAN, CRAHALLA, CREIGHTON, CRUZ, DALEY, DeLUCA, DENLINGER, DERMODY, DeWEESE, DiGIROLAMO, DONATUCCI, FAIRCHILD, FEESE, FICHTER, FORCIER, FRANKEL, FREEMAN, GEIST, GEORGE, GILLESPIE, GINGRICH, GODSHALL, GOODMAN, GRUCELA, HARHART, HENNESSEY, HERSHEY, HICKERNELL, KILLION, KOTIK, LEDERER, LEH, LESCOVITZ, MAJOR, MANN, MARKOSEK, McGILL, McILHATTAN, MILLARD, MUNDY, MUSTIO, NAILOR, O'NEILL, PAYNE, PISTELLA, RAPP, READSHAW, REICHLEY, ROHRER, ROSS, RUBLEY, SAINATO, SANTONI, SATHER, SAYLOR, SHANER, B. SMITH, SOLOBAY, STERN, E. Z. TAYLOR, THOMAS, TIGUE, TRUE, TURZAI, WALKO, WATSON, WILT, WOJNAROSKI, YOUNGBLOOD, PALLONE, MAITLAND, BOYD AND ARMSTRONG, APRIL 4, 2006
INTRODUCED AS NONCONTROVERSIAL RESOLUTION UNDER RULE 35, APRIL 4, 2006
A RESOLUTION 1 Designating the month of May 2006 as "Cystic Fibrosis Awareness 2 Month" in Pennsylvania. 3 WHEREAS, Cystic fibrosis (CF) is a genetic disease affecting 4 approximately 30,000 children and adults in the United States; 5 and 6 WHEREAS, A defective gene causes the body to produce an 7 abnormally thick, sticky mucus that clogs the lungs; and 8 WHEREAS, These secretions produce life-threatening lung 9 infections and obstruct the pancreas, preventing digestive 10 enzymes from reaching the intestines to help break down and 11 absorb food; and
1 WHEREAS, More than 10 million Americans are unknowing, 2 symptomless carriers of the defective CF gene; and 3 WHEREAS, CF occurs in approximately one of every 3,900 live 4 births in the United States; and 5 WHEREAS, The median age of survival for a person with CF is 6 less than 35 years; and 7 WHEREAS, With advances in the treatment of CF, the number of 8 adults with CF has steadily grown; and 9 WHEREAS, Nearly 40% of the CF population is 18 years of age 10 and older; and 11 WHEREAS, People with CF have a variety of symptoms attributed 12 to the more than 1,000 mutations of the CF gene; and 13 WHEREAS, These varied symptoms are associated with a high 14 rate of delay in diagnosis and treatment; and 15 WHEREAS, Infant blood screening to detect genetic defects is 16 the most reliable and least costly method to identify persons 17 likely to have CF; and 18 WHEREAS, Early diagnosis of CF permits early treatment and 19 enhances quality of life and longevity; and 20 WHEREAS, The treatment of CF depends on the stage of the 21 disease and the organs involved; and 22 WHEREAS, Clearing mucus from the lungs is an important part 23 of the daily CF treatment regimen, and other types of treatments 24 include tobramycin solution for inhalation and azithromycin; and 25 WHEREAS, There are world-class treatment centers in this 26 Commonwealth which specialize in the diagnosis of CF and the 27 care of persons with CF; and 28 WHEREAS, Improving the length and quality of life for people 29 with CF starts with awareness; therefore be it 30 RESOLVED, That the House of Representatives designate the 20060H0687R3832 - 2 -
1 month of May 2006 as "Cystic Fibrosis Awareness Month" in 2 Pennsylvania. C21L82DMS/20060H0687R3832 - 3 -