Amendment 2983 to House Bill 133 P.N. 1753, Regular Session 2015-2016

H0133B1753A02983 SFL:JSL 06/29/15 #90 A02983

AMENDMENTS TO HOUSE BILL NO. 133

Sponsor: REPRESENTATIVE MURT

Printer's No. 1753

Amend Bill, page 1, line 2, by striking out "and

developmental"

Amend Bill, page 1, line 2, by inserting after "disabilities"

or autism

Amend Bill, page 8, line 8, by striking out "AND

DEVELOPMENTAL"

Amend Bill, page 8, line 8, by inserting after "DISABILITIES"

or Autism

Amend Bill, page 8, line 14, by striking out "AND

DEVELOPMENTAL"

Amend Bill, page 8, line 14, by inserting after

"DISABILITIES"

or autism

Amend Bill, page 8, line 23, by striking out "AND

DEVELOPMENTAL"

Amend Bill, page 8, line 24, by inserting after

"DISABILITIES"

or autism

Amend Bill, page 8, line 28, by striking out "AND

DEVELOPMENTAL"

Amend Bill, page 8, line 28, by inserting after

"DISABILITIES"

2015/90SFL/HB0133A02983 - 1 -

or autism

Amend Bill, page 8, line 30; page 9, line 1; by striking out

"AND DEVELOPMENTAL DISABILITIES AND THEIR" in line 30 on page 8

and "FAMILIES OR LEGAL GUARDIANS" in line 1 on page 9 and

inserting

disabilities or autism

Amend Bill, page 9, line 2, by striking out "SUPPORT" and

inserting

supports

Amend Bill, page 9, line 7, by striking out "AND

DEVELOPMENTAL"

Amend Bill, page 9, line 7, by inserting after "DISABILITIES"

or autism

Amend Bill, page 9, line 10, by inserting after "COMMUNITY-

INTEGRATED "

supports and

Amend Bill, page 9, line 11, by striking out "AND

DEVELOPMENTAL"

Amend Bill, page 9, line 11, by inserting after

"DISABILITIES"

or autism

Amend Bill, page 9, line 15, by striking out "AND

DEVELOPMENTAL"

Amend Bill, page 9, line 16, by inserting after

"DISABILITIES"

or autism

Amend Bill, page 9, lines 18 through 22, by striking out "THE

CHOICE OF SERVICE OPTIONS SHALL BE" in line 18, all of lines 19

through 21 and "THEY STAY" in line 22 and inserting

The General Assembly encourages individuals with

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intellectual disabilities or autism to remain

Amend Bill, page 9, lines 27 through 30; page 10, line 1; by

striking out "MARCH 31, 2015, THERE ARE APPROXIMATELY 13,971" in

line 27, all of lines 28 through 30 on page 9 and "PEOPLE WITH

EMERGENCY AND CRITICAL NEEDS." in line 1 on page 10 and

inserting

April 30, 2015, there are approximately 10,234 people

with intellectual disabilities or autism with emergency and

critical needs waiting for home-based and community-based

services.

Amend Bill, page 10, line 1, by striking out "JANUARY 31" and

inserting

June 3

Amend Bill, page 10, line 2, by striking out "MORE THAN

1,400" and inserting

approximately 1,675

Amend Bill, page 10, line 4, by striking out "LIST" where it

occurs the second time and inserting

lists

Amend Bill, page 10, line 4, by striking out "IS" and

inserting

are

Amend Bill, page 10, line 9, by inserting after "LIST"

, or interest list,

Amend Bill, page 10, line 11, by striking out "UNNECESSARY"

Amend Bill, page 10, line 13, by striking out "AND

DEVELOPMENTAL"

Amend Bill, page 10, line 13, by inserting after

"DISABILITIES"

or autism

Amend Bill, page 10, line 15, by striking out "THEIR" and

2015/90SFL/HB0133A02983 - 3 -

inserting

individuals'

Amend Bill, page 10, line 15, by striking out "COMMUNITY-

INTEGRATED" and inserting

supports and

Amend Bill, page 10, line 16, by striking out "COMMONWEALTH"

and inserting

General Assembly

Amend Bill, page 10, lines 17 through 19, by striking out

"AND" in line 17, all of line 18 and "GUARDIANS" in line 19 and

inserting

disabilities or autism

Amend Bill, page 10, lines 29 and 30; page 11, lines 1

through 6; by striking out "COMMONWEALTH" in line 29, all of

line 30 on page 10 and all of lines 1 through 6 on page 11 and

inserting

integration mandates of the Americans with Disabilities

Act and the Rehabilitation Act.

Amend Bill, page 11, line 7, by striking out "COMMONWEALTH"

and inserting

General Assembly

Amend Bill, page 11, line 11, by striking out "AND

DEVELOPMENTAL"

Amend Bill, page 11, line 12, by inserting after

"DISABILITIES "

or autism

Amend Bill, page 11, line 17, by striking out "AND

DEVELOPMENTAL"

Amend Bill, page 11, line 18, by inserting after

"DISABILITIES "

2015/90SFL/HB0133A02983 - 4 -

or autism

Amend Bill, page 11, lines 24 and 25, by striking out "AND

DEVELOPMENTAL"

Amend Bill, page 11, line 25, by inserting after

"DISABILITIES "

or autism

Amend Bill, page 11, lines 26 and 27, by striking out "THE

PRIMARY" and inserting

instrumental

Amend Bill, page 11, line 28, by striking out "AND THEIR

FAMILIES"

Amend Bill, page 11, line 29, by striking out "PLAY

SIGNIFICANT DECISION-MAKING ROLES IN" and inserting

inform

Amend Bill, page 12, lines 2 through 8, by striking out all

of lines 2 through 7 and "(V)" in line 8 and inserting

(iv)

Amend Bill, page 12, line 13, by striking out "AND

DEVELOPMENTAL"

Amend Bill, page 12, line 13, by inserting after

"DISABILITIES"

or autism

Amend Bill, page 12, by inserting between lines 17 and 18

"Autism" or "autism spectrum disorder." Any of the pervasive

developmental disorders defined by the most recent edition of

the Diagnostic and Statistical Manual of Mental Disorders (DSM),

or its successor, including autistic disorder, Asperger's

disorder and pervasive developmental disorder not otherwise

specified.

Amend Bill, page 12, lines 29 and 30; page 13, lines 1

through 23; by striking out all of said lines on said pages

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Amend Bill, page 14, line 13, by inserting after "SHALL"

, based on available funding,

Amend Bill, page 14, line 15, by inserting after "WITH"

Amend Bill, page 14, lines 15 and 16, by striking out "AND

DEVELOPMENTAL DISABILITIES" and inserting

disability or autism

Amend Bill, page 14, line 17, by striking out "OR

DEVELOPMENTAL"

Amend Bill, page 14, line 18, by inserting after "DISABILITY"

or autism

Amend Bill, page 14, line 21, by inserting after "AN"

approved

Amend Bill, page 15, line 29, by striking out "LIST" and

inserting

lists

Amend Bill, page 15, line 29, by inserting after "DISABILITY"

or autism

Amend Bill, page 15, line 30, by inserting after "(A) "

General rule.--The department shall, within four months of

the effective date of this act, reorganize its waiting list, or

interest list, for individuals with autism into a waiting list

that prioritizes individuals according to the categories of

emergency needs, critical needs and planning needs. This data

shall be collected using a tool that measures the level of care

needed and that does not limit such assessment data collection

based on the geographic area where autism services are provided

in this Commonwealth. Additionally, the prioritization of need

shall not include consideration of services the individual with

autism currently receives.

(b)

Amend Bill, page 16, line 6, by striking out "ALLOWABLE"

Amend Bill, page 16, line 18, by striking out "(B)" and

inserting

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(c)

Amend Bill, page 17, line 5, by striking out "(C)" and

inserting

(d)

Amend Bill, page 17, lines 8 and 9, by striking out "AND

DEVELOPMENTAL"

Amend Bill, page 17, line 9, by inserting after

"DISABILITIES"

or autism

Amend Bill, page 17, line 11, by striking out "AND

DEVELOPMENTAL DISABILITY" and inserting

disabilities and autism

Amend Bill, page 17, line 12, by striking out "(D)" and

inserting

(e)

Amend Bill, page 17, line 23, by striking out "AND

DEVELOPMENTAL"

Amend Bill, page 17, line 23, by inserting after

"DISABILITIES"

or autism

Amend Bill, page 17, by inserting between lines 23 and 24

Section 7. Report.

(a) General rule.--The department shall submit a written

report by September 30, 2015, and every four months thereafter,

to the following:

(1) The Governor.

(2) The chairman and minority chairman of the Public

Health and Welfare Committee of the Senate.

(3) The chairman and minority chairman of the

Appropriations Committee of the Senate.

(4) The chairman and minority chairman of the Health

Committee of the House of Representatives.

(5) The chairman and minority chairman of the Human

Services Committee of the House of Representatives.

(6) The chairman and minority chairman of the

Appropriations Committee of the House of Representatives.

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(7) The department's Medical Assistance Advisory

Committee.

(b) Posting of report.--The report shall be posted on the

department's Internet website in an accessible format.

following:

(1) The total number and age ranges, including under 18

years of age, ages 18 to 21 and over 21 years of age, of

individuals currently on the department's waiting list for

home-based and community-based services for individuals with

intellectual disabilities.

(2) The number and age ranges, including under 18 years

of age, ages 18 to 21 and over 21 years of age, of

individuals currently on the department's waiting list for

home-based and community-based services for individuals with

intellectual disabilities:

(i) with emergency needs;

(ii) with critical needs; and

(iii) the combined number of those with emergency

needs and critical needs.

(3) The number of individuals added to the department's

waiting list for home-based and community-based services for

individuals with intellectual disabilities in the last four

months and the reasons they were added to the waiting list.

(4) The number of individuals removed from the

department's waiting list for home-based and community-based

services for individuals with intellectual disabilities in

the last four months and the reasons they were removed from

the waiting list.

(5) The number of months or years that individuals with

emergency needs currently on the department's waiting list

for home-based and community-based services for individuals

with intellectual disabilities have been on the waiting list.

(6) The number of months or years that individuals with

critical needs currently on the department's waiting list for

home-based and community-based services for individuals with

intellectual disabilities have been on the waiting list.

(7) The number and age ranges, including under 18 years

of age, ages 18 to 21 and over 21 years of age, of

individuals currently on the department's waiting list for

home-based and community-based services for individuals with

intellectual disabilities who are in:

(i) a State center;

(ii) a private intermediate care facility for

individuals with intellectual disabilities (ICF/IID) or

persons with other related conditions (ICF/ORC);

(iii) a State hospital;

(iv) a private psychiatric hospital;

(v) a residential treatment facility; or

(vi) any other public or private facility or other

institutional setting.

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(8) The total number and age ranges, including under 18

years of age, ages 18 to 21 and over 21 years of age, of

individuals currently on the department's waiting list, or

interest list, for the adult community autism program and the

adult autism waiver.

(9) The total number and age ranges, including under 18

years of age, ages 18 to 21 and over 21 years of age, of

individuals currently on the department's waiting list, or

interest list, for the adult community autism program and the

adult autism waiver:

(i) with emergency needs;

(ii) with critical needs; and

(iii) the combined number of those with emergency

needs and critical needs.

(10) The number of individuals added to the department's

waiting list, or interest list, for the adult community

autism program and the adult autism waiver in the last four

months and the reasons they were added to the waiting list.

(11) The number of individuals removed from the

department's waiting list, or interest list, for the adult

community autism program and the adult autism waiver in the

last four months and the reasons they were removed from the

waiting list.

(12) The number of months or years that individuals with

emergency needs currently on the department's waiting list,

or interest list, for the adult community autism program and

the adult autism waiver have been on the waiting list.

(13) The number of months or years that individuals with

critical needs currently on the department's waiting list, or

interest list, for the adult community autism program and the

adult autism waiver have been on the waiting list.

(14) The total number and age ranges, including under 18

years of age, ages 18 to 21 and over 21 years of age, of

individuals currently on the department's waiting list, or

interest list, for the adult community autism program and the

adult autism waiver who are in:

(i) a State center;

(ii) a private intermediate care facility for

individuals with intellectual disabilities (ICF/IID) or

persons with other related conditions (ICF/ORC);

(iii) a State hospital;

(iv) a private psychiatric hospital;

(v) a residential treatment facility; or

(vi) any other public or private facility or other

institutional setting.

(15) The estimated per-person cost to serve an eligible

individual on the waiting list under paragraph (1).

(16) The estimated per-person cost to serve an eligible

individual on the waiting list, or interest list, under

paragraph (8).

(17) The total estimated cost to serve all eligible

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individuals on the waiting list under paragraph (1) and the

estimated cost to serve all eligible individuals in each

category listed under paragraph (2).

(18) The total estimated cost to serve all eligible

individuals on the waiting list, or interest list, under

paragraph (8) and the estimated cost to serve all eligible

individuals in each category listed under paragraph (9).

Amend Bill, page 17, line 24, by striking out "7" and

inserting

Amend Bill, page 17, line 25, by striking out "IN 60 DAYS"

and inserting

immediately

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