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Pennsylvania House of Representatives
04/18/2024 09:41 PM
Pennsylvania House of Representatives
https://www.legis.state.pa.us/cfdocs/Legis/CSM/showMemoPublic.cfm?chamber=H&SPick=20170&cosponId=22861
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House of Representatives
Session of 2017 - 2018 Regular Session

MEMORANDUM

Posted: February 10, 2017 09:43 AM
From: Representative Thomas P. Murt
To: All House members
Subject: Nonketotic Hyperglycinemia Awareness Day Resolution
 
In the near future I plan to introduce a resolution designating May 2, 2017 as “Nonketotic Hyperglycinemia Awareness Day” in Pennsylvania.

Nonketotic Hyperglycinemia (NKH), also known as glycine encephalopathy, is a severe and rare disorder which leads to seizures, breathing and feeding difficulties, muscle limpness and lethargy. NKH affects 1 of every 60,000 births, and there are fewer than 500 children worldwide living with NKH. There is currently no cure and very few available treatment options.

Please join me in cosponsoring this resolution to raise awareness of NKH in order to improve the lives of those affected by it.

Introduced as HR115